meet sweet broxton + read his story :: the run for broxton :: laura winslow photography

 

 

 

NOTE:  Darling Broxton passed away on April 20th, 2012.  May his beautiful soul rest in peace and may he soar high above with all the other special angels gone before their time.

 {Read on for all the ways that you can help Broxton + sign up for The Run for Broxton}

 

Meet Broxton.

pib pinterest meet sweet broxton + read his story :: the run for broxton :: laura winslow photographygilbert family photographer 19 meet sweet broxton + read his story :: the run for broxton :: laura winslow photography

A darling just-turned two year old, completely and utterly adored by his family. Soft, whispy dark blonde hair, long eyelashes and an innate sweetness about him.  You can’t help but want to hold him.

The amazing bond between Broxton and his big brother is so incredible to witness, full of sweet tenderness and protection.

Broxton is a special gem in this world.  His sweet soul is full of life, but his small little body is hurting.

Broxton has Batten Disease and has recently been put on Hospice care.

Batten Disease is a rare genetic disorder in which affected children suffer mental impairment, worsening seizures, and progressive loss of sight and motor skills.  Eventually, children with Batten Disease become blind, bedridden, and unable to communicate, and it is presently always fatal.  The Infantile form of Batten Disease begins between the ages of 6 months and 2 years and progresses rapidly.  Affected children fail to thrive, have abnormally small heads, and typically have short, sharp muscle contractions.  Initial signs of this disorder include delayed psycho-motor development with progressive deterioration, other motor disorders, or seizures,  The infantile form has the most rapid progression and children live into their mid-childhood years. 

{source | the Batten Disease Support and Research Foundation web site}

You can read about Broxton and the Taylor family’s journey on their Caringbridge site HERE.

Imagine for a moment (because unless you have gone through this, we will never really fully understand beyond imagining) as a parent, having a little one year old full of life–walking, talking and smiling. Then, one day things begin to change and suddenly that child loses the ability to walk, to talk, to smile, to eat…this is the world that the Taylor family lives in. Just this past June, Broxton was diagnosed with Batten Disease, and in the just over six months since, their whole universe has changed.

Wouldn’t you do everything in your power to help your child? Knowing the raw love that comes with being a parent, doesn’t your heart hurt? Don’t you want to do everything you can–big or small–to help this family? To help little Broxton? To help other little ones suffering from this horrible disease?

The Run for Broxton is an event that will take place in Gilbert at Freestone park in just a few short weeks on Sunday, February 12, 2012. We would LOVE you to help this family with medical bills, with the cost of care and also help other little ones that have Batten Disease.

Simply CLICK HERE to sign up for the run. It would be such a show of community support if you did. The price is so reasonable–$15 for a 1 mile walk/run or $25 for a 5K.

Can’t make the race but want to donate? Simply CLICK HERE to take you to the direct donation site.

Ways You can Help Broxton:

~ Sign up for the Run for Broxton

~Donate directly to Broxton

~Share this blog post via Facebook or Email

~Leave words of encouragement to the Taylor family on this blog post

~Pray and/or send positive thoughts to the Taylor family

I urge you to help in any way you can, even if it is just to share this blog post to spread the word or to learn more, or to leave sweet words of encouragement. Thank you, thank you!!

Special Child

You weren’t like other children,

And God was well aware,

You’d need a caring family,

With love enough to share.

And so He sent you to us,

And much to our surprise,

You haven’t been a challenge,

But a blessing in disguise.

Your winning smiles and laughter,

The pleasures you impact,

Far outweigh your special needs,

And melt the coldest heart.

We’re proud that we’ve been chosen,

To help you learn and grow,

The job that you have brought us,

Is more than you can know.

A precious gift from Heaven,

A treasure from above,

A child who’s taught us many things,

But most of all – “Real Love”.

~sharon harris

xoxo,

laura

 

Laura is a mother of two residing in the Arizona desert. She is fluent in Spanish and Toddler, believes that photo shoots with kiddos who love to run, climb stairs, play in rocks and giggle are some of the most fun, plans her next trip every week online (but only actually takes some of the trips), never met a container of Talenti Sea Salt Caramel gelato that she didn’t love and has more ideas and dreams than time. Laura loves capturing that beautiful family photo where everyone is cuddled close and looking at the camera, but adores capturing the in-between, sacred moments even more.
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  • Stephanie - I don’t know this family but being a Mama of 2 little boys myself I shed a few tears hearing their story. My heart aches for them. I only hope they can be strong through what is without a doubt the hardest thing they will ever go through in this life.

  • Laura Winslow Photography - Thank you so much for taking the time to comment, Stephanie. What a gift of support and love. Thank you for the sweet words. xoxo

  • lindsay k. - what precious moments that you captured for this family. my heart is aching for them. i just cannot even imagine the pain they are going through. i am putting them on my prayer list. may God bless them and their journey in the days, months, years ahead.

  • Laura Winslow Photography - Thank you so much, Lindsay. Your prayers mean the world. Hugs for your support! xoxo

  • Kristin B. - I am also a mother of two little boys (2 yr old and 4 yr old) and am currently pregnant with number 3. I am still crying from reading their story. My heart is breaking for this precious family. I will continue to pray for them and Broxton. I pray they feel God’s arms of love and peace around them.

  • Leah - Taylor Family – – We are absolutely praying for your sweet & beautiful family. I wish I knew anything that could take away your fear & pain and make this better. I only know that somehow God holds us through it. I will be praying especially that you feel that now and always. I’ll do whatever I can to help!!! – Leah

  • Laura Dennis - I love all the moments you captured. This is a unbelievably strong family that never gives up. See you at the run!

  • Leslie - God Bless all of you. What a special little boy Broxton is! My prayers are with you.

    Leslie

  • Vicki - Praying for you, precious Broxton and family…I cried as I read your story. Sending you hugs from our little family in Minnesota.

  • Laura Winslow Photography - Thank you so very much, Kristin, Leah, Laura, Leslie and Vicki. Your words and prayers mean so very much. xoxo

  • Crystal - You’re all in my prayers. I can’t imagine how you’re feeling, but know that I pray. And God is so much bigger than our pain, so my prayer is that y’all can trust in Him and take your burdens to the foot of the cross. Your family is so beautiful and I know you Broxton has reached far and wide, all the way to Alabama :)…a true blessing is he. Much love <3

  • Stori Puccio - Broxton, what a strong name. I can only imagine what a strong impact he has already made on this earth but more importantly how bright he will be in Heaven with his Creator. I will pray for that miracle. I pray for the whole family. And your poem Laura blew me away. I encourage this family to read Heaven is for Real.

  • Laura Winslow Photography - Thank you so much for your sweet, kind words, Stori. Such heartfelt thoughts. I have also heard “Heaven is for Real” is an inspirational book and story. The poem is not mine, but a poem from Kristi’s Caringbridge site that she found on another blog about another sweet little boy, baby Tripp. xoxo

  • Becky (hucklebuckles) - I will never understand why children have to suffer! This just breaks my heart (which has been breaking for several children as of late) My thoughts and prayers are with this family daily!! Thank you Laura for sharing their story and beautiful pictures with us!

  • Laura Winslow Photography - Thank you for your prayers and kind thoughts, Becky! xoox

  • Bob & Patty Gennario - Thank you, Laura for your beautiful pictures of Kristi, Kody,Brody & Broxton and for letting people know about them so they can help, not just with money, but prayers and kind words. Kristi is our niece, and not a day goes by that we don’t pray for them and wish we could do more. God gives only very special people very special children and Kristi and Kody are very special.

  • Kari - This story just tears me up, and my heart aches for the Taylor family! You are all in my prayers, and I will share your message, for sure! Praying for God’s hand to soothe, as only He can!

  • Kristen S. - Great work, Laura! Your pictures of Broxton and his family are absolutely beautiful! I can hardly type through the tears that are rolling down my face. The Taylors are such wonderful people, and you’ve done a beautiful job of portraying Broxton’s story with your amazing photography! I hope that many people will support the Taylors and research for Batten Disease!

  • Angela Grice - What a beautiful family that radiates the love that they have for each other. You captured their spirits beautifully and their story made me want to cry. I know as a parent we would take on all of our childs suffering so that they would not suffer for even a brief moment. May God bless this beautiful family and my prayers are with them. I cannot be there but I will be sure to donate.

  • Laura Winslow Photography - Thank you, everyone, for your sweet and thoughtful words. It really was such an honor to photograph this special and loving family. I know your prayers mean the world…xoxo

  • JP Thomason Jr - Laura,

    Through your lens and creative soul you have given us God’s Eye view of Broxton and his amazing Family. He couldn’t have chosen a better artist than you to chronicle this most tender and cherished photographic achievement. Thank you.

  • Tara Thackeray - Beautiful photos. This story brought tears to my eyes. I’m sure this family will forever cherish these images. This family will surely be in my prayers.

  • nikki - this breaks my heart! praying for this sweet, sweet boy and his family! beautiful photos!

  • Candy Howard - Nothing I type and then delete seems to be right. Praying for peace and comfort for little Braxton and his family. It seems like the biggest lessons come from the littlest bodies sometimes. He is reminding us all, in a very powerful and heartbreaking way, to cherish every day, every gift, every person in our lives.

  • Alison - God bless this family, and I will be praying for them. As Candy Howard said above, it shows we need to really cherish every single person in our lives. God has put them there for a reason. Blessings.

  • Sarah - Oh, this touched my heart. Such a sweet family. Praying for all of them, and thank you Laura, for capturing them so beautifully!

    xo

  • Miranda - I’m a complete stranger to this family and to Mr. Broxton, but oh-so-badly I want to pick him up and give him a big ‘ole hug. And then, turn around and give his mom and dad an equally large hug. This really has touched me in a way I can’t describe.